The surgery itself was a success. Crew is ornery... to be expected. After putting tubes in his ears and removing his tonsils and adenoids the audiologist was able to obtain an ABR. He hasn't had an ABR since birth only the hearing tests using the sound booth. The ABR is much more accurate and reliable. I really thought Crew was playing games in the sound booth that he really could hear but was acting "shy" or possibly "zoning out". Sometimes Crew zones when he is in a situation that he doesn't like. Or so I thought.
The results of the ABR confirm that Crew's hearing loss is progressing. I'm shocked. My heart is torn. It just can't be! Yet, the numbers play over and over in my mind. And I wonder... how much longer until he can no longer hear my voice:(
Secondly, I felt we had his seizures under control but the audiologist reported at least 3 seizures during the 45 minute hearing test. One was at least 4 - 5 minutes long. And I wonder what is happening to my child? There are so many questions in my head and my heart aches.