Tuesday, September 29, 2009

A History of Sorts...

During the first 12 hours of Crew's life the NICU staff noted his first seizure. I was notified the next morning, and to tell you the truth, I really doubted that what they were telling me was true. Carl asked specifically what they witnessed and they said "his eyes flickered". Immediately he was started on an anti-seizure medication. I always questioned whether or not it was necessary.

After a year he was seizure free and we took him off the medication. Things were good for a long while but by the time he turned TWO he was having hundreds of myoclonic seizures each day. The seizures were only 1 - 3 seconds each. The neurologist suggested keeping him off the meds so long as the seizures weren't putting him in danger or slowing his development. I kind of chuckle inside now thinking about that statement. I mean, after all... we are dealing with a child who suffered a hypoxic ischemic injury at birth. Of course there will be delays and I have no way of knowing how much the seizures have contributed to that, if at all.

The avoidance of medication came to an end after he suffered yet another "type" of seizure... his first grand mal in October of 2006. Since then, the seizures have been controlled with some break through seizures every 6 months to a year.

The past two weeks we have seen a change in that pattern. His seizures are becoming much too common around here. A blood draw yesterday... and today I'm waiting for a call from the neurologist. I've discussed the situation with our pediatrician here. So far it looks like we will have to introduce some new medication but I'm waiting to hear what the neurologist has to say.

I'm not quite sure what point I'm trying to get at here. Normally I can go along with this crazy life and be just fine but the last two days have been tough. I can't think about it without getting upset. Yesterday, I cried during my 5:00 am run and it had nothing to do with my knee:)

Thursday, September 24, 2009

Labor Day Weekend

It's been two years since we've been to Powell. We've been looking forward to it all summer. I thought it odd that we waited all summer to go and then 3 days after school started I pulled my kids out for a vacation. Well, that is the week we had for our houseboat so there you go!

This year we didn't take a powerboat. Instead we had 3 wave runners. This was great for taking the kids out on short rides. Taking the wave runners out in the main channel during the day was crazy. It was so choppy, therefore a really rough ride. Carl and Crew went out for a long explore and Crew fell asleep. He loved every minute of those rides but it sure did wear him out.

Lake Powell is great for just taking it easy. The weather was perfect... not too hot or cold.

One of our favorite things to do is sleep out under the stars on the top of the houseboat. One night we had a few raindrops but other than that it was perfect.

The boys loved fishing this year. There's nothing like sitting on the back deck hour after hour... at least that's what they say:)

Keeping Crew entertained was quite the physical undertaking. He either wanted to be riding the wave runner, swimming, hiking or eating junk food. By the time we came home I was ready for another chiropractor treatment. This is due partly to the lack of running, packing Crew, and sleeping on a crappy foam mattress. I cringe even typing the word "mattress" because it really doesn't qualify as that. Sheesh, I must really be getting old.

Great water temps. I crammed in my long run (17 miles) the night before we left. I knew I wouldn't have a chance to run there so my jogging belt became my friend once again. I got in the water a couple different times and ran and ran until I was extremely bored. You really don't go very fast or far when deep water running.
Crew seemed to be a little more comfortable in the water with his dad. Daddy's boy!

Hunter knee boarding in the main channel. Crazy kid!

Oops... don't forget to go home with a picture of myself! This is the only one;)

Thursday, September 10, 2009


I can't believe here we are starting another school year. Its kind of sad that they are growing up so fast and then again.... I'm just loving this time with them. Stockton is a 7th grader, Hunter in 5th, and Crew, my preschooler. Three boys, three different schools, two different school districts. Crew is bussed to another school district where they can better accommodate his needs. All three are gone by 7:30 in the morning and then I'm off to work my 4 hour shift.

Yesterday I met with Crew's teacher. She is new this year and it is her first year teaching but I'm so excited to have her. Crew has been happy so far. He is imitating many signs during class and at home. The kids in his class are interacting well with him... helping push his walker (not necessarily a good thing though;), bringing him toys, etc. Two years of preschool already but I really feel like this year is OUR YEAR! Please don't quote me on that:)

Stockton seems to be much happier this year at his school. He comes home with a heavy backpack everyday... daily math and science homework but he does the work efficiently and then he is off to play. We are looking for a new piano teacher for him this year.

Hunter and school don't necessarily get along. We are working on getting him on a better schedule. He just wants to sleep in... never did that in the summer though. They've been brushing up on their cursive writing this year and I have to say I'm impressed. His writing looks really nice.

The days are definitely getting shorter which is sad to see... but then again it does help that its dark when bedtime rolls around. I have my scheduled 20 miler for Saturday morning and a RS Lesson to prepare. I should probably get some shut eye.