Thursday, March 25, 2010

My Birthday

The kids actually spent my birthday at Grandma's. This picture was taken a day early. I worked the morning of my birthday and then Grandma came and picked up H and Crew. Stockton headed off with his scout group for an overnight camp out.

Carl took me to the city where we met up with friends for my first ever Korean BBQ. It's been a long time since we've gone out with the friends and we really had a great time. The company was awesome and the food pretty good too;)Afterwards, we stayed the night at the Hilton. The next morning was the most memorable part of the weekend. Carl and I got up and drove to Memory Grove Park where we headed up City Creek Canyon for a run. The temps were low enough that we had to bundle up but were warm enough once we got moving. We ran a total of 10 miles. As you can see from this chart, the first 5 miles were uphill. Good times!

Friday, March 19, 2010

Phenol Injections

The past month has been crazy around here. The day after Crew's birthday we headed down to Primary's for phenol injections. We've done the botox several times but it just hasn't been making a huge difference so we decided to try phenol. With the phenol you have to be sedated. It was a very minor procedure. They checked us in and we waited in this boring room for about an hour... no magazines, no windows, no toys. I was really feeling sorry for those who have to spend very much time in the hospital.

Once they took Crew back we waited about 15 minutes before we got to see him. He did really well recovering from the sedation. Once he was eating and drinking they sent us home. The nurse got a kick out of Crew's passion for cheetos. He wouldn't take his eyes off the cheetos and the bag was gone within a few minutes. This was great for us because we were discharged quickly.

Phenol was injected into his hamstrings and adductors. Botox was injected into his hamstrings and gastrocs. I had no idea how much the spasticity in his adductors was limiting him until it was reduced. We are seeing a huge improvement in Crew's mobility. Not sure how long it will last so we've been doing lots of walking and physical therapy since.

Little man likes to dress himself;) His shoe fettish usually involves dress shoes and quite often chooses non matching shoes. I got a kick out of the "two left feet" on this particular day. What I will do to keep him happy! *sigh*