Wednesday, November 28, 2007
Crew has been a pill about the eating thing. I tried giving him his meds at therapy (in front of 4 therapists) and he spit them all over the place. Therapy has been extremely hard on him the past couple days. He has never been worked this hard before plus I know he doesn't feel his best. They push him until he collapses and then make him get up and do it again. There has been a lot of crying and I feel real bad. It's a battle I face... not knowing how hard to push. I want to stick it out though. I would hate it if we didn't finish and then all those years in the future wondering "what would have happened" if we had finished it.
I did take Crew to the pediatrician to get a good bill of health. He said he just might have some lingering achiness from the flu, plus he is getting a cold. He thought it would be best to continue with the intensive therapy. At least I know he doesn't have an infection or something.
When we got home today, the boys and I delivered flyers throughout the neighborhood reminding everyone about the "Scouting For Food" drive. Tomorrow night is the Pinewood Derby and I am going to miss it. I am staying in Orem at my uncles so we can save ourselves the commute. The derby really is more of a father/son event and this way Carl will be forced to take off work so he can take care of the boys and go to the derby. Dad and boys are still finishing their cars. I just hope S and H have a finished car by the time it starts. LOL.
Oh, and to top it off my eyelashes are falling out!!! I haven't changed my makeup or anything... anybody know why this could happen? Stress maybe? Dry weather?
Monday, November 26, 2007
Watching him walk with the suit on I could see that he really had to work hard to move his legs. It reminded me of those days when we struggled to move pipe through fields of deep clay/mud. Every step took much effort as our feet felt glued to the ground. We were tough little farm kids and without a doubt our lifestyle contributed to that.
Crew works much harder than we did as kids. Every step takes effort as he works those muscles. It's hard to watch him struggle and the staff at "Now I Can" asked how often his older brothers help him. They are so good to pack him around, help him in/out of a chair, and get him what he needs. I haven't really spent a lot of time thinking that we are hurting him in the long run by doing these things for him. Still, its so hard to find the balance between making him "work" and taking care of his needs.
The PT evaluation went well. We've set some goals mostly centered on building strength and endurance and transitions.
Crew is struggling to eat which is an indication that he still is not feeling well. I can't help wondering if the timing of this is all wrong?
Sunday, November 25, 2007
I'm still worried that we will get there for the evaluation and be turned away for some unknown reason. Keep your fingers crossed for us:)
Saturday, November 24, 2007
Your Christmas is Most Like: A Christmas Story
Loving, fun, and totally crazy.
Don't shoot your eye out!
Wednesday, November 21, 2007
I found this last surviving daisy in my garden just this week which is really nothing short of a miracle. The temps here have been dipping below freezing. This daisy is a symbol to me of hope. Hope has become extremely important to me over the past few years. I am so thankful for believing that a positive outcome is possible even when there is some evidence to the contrary.
How grateful I am for my faith, good health, great friends and my country.
HAPPY THANKSGIVING TO ALL!
Sunday, November 18, 2007
Jeesh, I should get paid for this:)
Friday, November 16, 2007
Introducing Guest blogger: Sam
Nice on the Christmas lights. I am actually a big advocate of supporting one of Wyoming ’s biggest resources, Coal. Most of the power plants in the country are fired by Coal, and thus I have decided to not only stick with the Christmas lights I already have, but in July at a garage sale I found a deal on more lights, you know still in the box never been used. I was able to pick up 11 sets (275 feet total) of the C-7 lights which are rated at 125 watts each set. With this in mind, if I plug all of the new lights in it will be an additional 1375 watts per hour which translates into 1.375 kw per hour. If I run the lights for 6 hrs per night (6X1.375kwh=8.25kwh) that will be an additional 8.25 kwh per night, and running the lights from the weekend before thanksgiving to new years that will be a total of 5 weeks or 35 days which in turn would equal (8.25kwhX 35 days = 288.75 kwh) an additional 288.75kwh. With my electricity costing about $0.08 per kwh ($0.08 X 288.75 = $23.10) I figure I will spend an extra $23.10 this year for my new lights. Good thing I only spent $5 for the whole lot.
As for old flames. I am glad it was nice to see him again. It is always interesting to run into those from a former life. Some are good to see, and others are good to not see. As for my wife, she doesn’t mind if I run into old flames… just as long as they don’t talk too much.
Regarding Thanksgiving plans. We have the same problem of commitment. Most likely thought, are lack of planning is what is screwing up your plans. Sorry!!!
The skiing sounds fun. Great family activity. Trying to find a deal on skis, or finding a deal on anything for that matter just runs in the genes (a blessing and a curse from our dear Grandpa A). I think you should just give up on buying the skis. Go for a snow board instead. Something I have wanted to try for years but just haven’t taken the time or gotten up the nerve. I could just see you tearing up the slopes and running circles around your boys, in a HOT PINK snowsuit and white fur hat.
Love those Crew smiles. It has got to be great to relish in those simple victories of finding something that he really enjoys and can develop doing.
Thursday, November 15, 2007
My efforts were in vain. He didn't sleep this afternoon and come bedtime he continued to fight it! Carl came home early tonight. I was reading with H and Crew was crying in his bed. Carl layed down with him for about 20 minutes and Crew finally fell asleep.
Not 5 minutes later I remembered that I had not given Crew his seizure meds. I usually give him the Depakoate mixed with yogurt or icecream at about 7 pm but occaisionally (about once every 6 months) I forget. So then we are left with the decision to leave him asleep and just give him his next scheduled dose in the morning or wake him up and give him the meds.
We chose to wake him up:) It really was a funny site... me holding the kid and prying his mouth open with my fingers, Carl with a spoonful of icecream forcing it into his mouth. Who does that?
Tuesday, November 13, 2007
1. This year we purchased new Christmas lights. DH is a big advocate of the energy efficient LED lights and so we never buy the cheap bulbs anymore. These new lights are suppose to be 98% more efficient. We were so excited about it! We hung them up and waited until dark to enjoy our Christmas display only to discover the lights aren't really that bright at all. Very dim. Big disappointment. Well duh, of course they're more efficient...
2. Last week I ran into an old boyfriend. Fourteen years ago our relationship ended on good terms. He broke off the relationship after it became clear that my parents had some "major issues" with us getting married. I was heartbroken and so was he but it just wasn't going to work out... It was really neat seeing him again. He just got married about 3 years ago. He is happily married and has an adorable little girl.
3. We still don't know where we're going for Thanksgiving. It doesn't bother me but I think it bothers the extended family. We don't really have the reputation for being big event planners. We kind of just go with the flow. It's probably rude not to make a commitment. What do you think?
4. The boys are all geared up for skiing this year. We found a place that rents the skis for the whole season. You take them home and keep them. Use them as much as you want and return them in April. We decided to take this route for S and H as they are growing so much. DH got all his ski gear new for his birthday. I'm the only one without the gear. I've been bidding for skis on Ebay for weeks but haven't been able to win anything yet. Tightwad!
5. I spent some time with Crew at preschool today. When I arrived he was playing with the Discovery Toys Zip Track Rally. He loves it! I am so excited about it and thrilled that I've finally found something he likes. I think I'll drop a note to Santa.
Saturday, November 10, 2007
Thursday, November 08, 2007
Monday, November 05, 2007
I love watching how you all find my site and seeing readers across the globe. Many of you read my blog everyday yet never comment or reveal yourselves.
Here are some of the google searches that have brought readers my way this past week:
What music do 5 and 6 year olds listen to
Courage does not always roar
A Penny Saved is a Penny Earned
Birth stories at Timp Hospital
got my DAFO
Quadruplets 3 girls one boy
Herrin Twins Mormon
Having 3 boys
No oxygen at birth
toddler ear dried blood
I would love to hear from more of you. Please comment and say Hi:)