Tuesday, September 29, 2009

A History of Sorts...

During the first 12 hours of Crew's life the NICU staff noted his first seizure. I was notified the next morning, and to tell you the truth, I really doubted that what they were telling me was true. Carl asked specifically what they witnessed and they said "his eyes flickered". Immediately he was started on an anti-seizure medication. I always questioned whether or not it was necessary.

After a year he was seizure free and we took him off the medication. Things were good for a long while but by the time he turned TWO he was having hundreds of myoclonic seizures each day. The seizures were only 1 - 3 seconds each. The neurologist suggested keeping him off the meds so long as the seizures weren't putting him in danger or slowing his development. I kind of chuckle inside now thinking about that statement. I mean, after all... we are dealing with a child who suffered a hypoxic ischemic injury at birth. Of course there will be delays and I have no way of knowing how much the seizures have contributed to that, if at all.

The avoidance of medication came to an end after he suffered yet another "type" of seizure... his first grand mal in October of 2006. Since then, the seizures have been controlled with some break through seizures every 6 months to a year.

The past two weeks we have seen a change in that pattern. His seizures are becoming much too common around here. A blood draw yesterday... and today I'm waiting for a call from the neurologist. I've discussed the situation with our pediatrician here. So far it looks like we will have to introduce some new medication but I'm waiting to hear what the neurologist has to say.

I'm not quite sure what point I'm trying to get at here. Normally I can go along with this crazy life and be just fine but the last two days have been tough. I can't think about it without getting upset. Yesterday, I cried during my 5:00 am run and it had nothing to do with my knee:)

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