Living in a rural area has its advantages and disadvantages. I love the feeling of open spaces, a close-knit community, small-town celebrations, etc. However, when it comes to getting some of the services such as therapy.... its a challenge.
The school district here has somehow squirmed their way out of providing PT services for those kiddos in need. As far as I know, its been 3 years since they've either staffed or contracted with a Physical Therapist. The Special Education Rules state that if a child qualifies for "related services" the school is required to provide those services.
Last month at the IEP, we were not willing to agree with the district to use what they call "Motor Services" in place of PT services. The school district agreed to obtain an "independent evaluation" and meet again the following month.
Meanwhile, I have been doing my homework in preparing myself to ADVOCATE for my child. With an excellent support system, my sister and our Early Intervention team, I felt prepared for todays shootout.
After a grueling 2.5 hour meeting, we were successful in obtaining weekly PT and weekly OT services for Crew during his Pre-school hours. This is a MAJOR breakthrough! I wouldn't say that I am thrilled with the services but I feel content which is okay!
Advocating for Crew is emotionally exhausting. I don't like confrontation and I don't like it that I have to stand and "fight" to get him the services that he is entitled to. It shouldn't have to be so painful and negative. I don't like it.... but I'LL DO IT!