If I've learned anything from the journey of raising Crew it would be to celebrate each and every achievement. The "BIG" milestones are few and far between... sitting up, crawling, walking etc. As a family we cheer for the little things. Over time I've noticed that S & H's awareness of the situation has changed. Their prayers are different. Instead of "Bless Crewser that he can walk", its "Please help Crew to get really fast in his walker".
In their presence its my job to be positive always complimenting the little things and making a big deal out of stuff. "Crew is feeding himself! Look how he can scoop! Check it out... he understands cause & effect (while playing with his ball popper)!"
The praise goes on and on. I am proud! We love him! He brings us joy!
My heart aches. He doesn't talk. The list could go on and on but I try not to focus on what he can't do. Yet, the pain is there and I desperately want to hear what is going on in his little head.
And so we wait, we pray and we hope for yet another miracle because the truth of the matter is, this battle can be won!