Looking forward to seeing your childs neurologist seems very strange. Consequently, I must be a strange person. It's been 3 weeks since the big seizure. Tomorrow is the big day when we can finally sit down with his neurologist and discuss medications, order tests, etc. Yes, I have seen the pediatrician and we are giving Crew 2 doses of Dilantin daily. He hasn't had anymore grand mal seizures but is still having the smaller, more frequent ones which happen 100's of times a day. It is time to get this figured out. I want Crew seizure free! We are switching neuro's and I am feeling confident that this new one, Dr. F, will be able to help us.
Also, tomorrow we will be seeing Crew's opthalmologist. Hopefully, we will get a good report.
Wish me luck!
My PCMC trip is for next week...too bad we can't meet up!
ReplyDeleteI absolutely LOVE that place. The doctors are amazing! Hopefully they'll be able to figure out what's going on with Crew...I don't blame you for wanting a seisure free child!! Hope it all goes well!
I wish the best of luck to your family. I also love PCMC. They were wonderful with my son. (((HUGS)))
ReplyDeleteI hope that you get the answers you are looking for. I know how it is to look forward to seeing a doctor.
ReplyDeleteluck, luck, luck!
ReplyDeleteI'm so glad you have found a doctor you have confidence in! Hopefully things will continue to improve for your little guy!
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