Wednesday, October 18, 2006

Neurology appointment plus some

Monday was a long day. We had to be to the NFC by 9:00 am. I thought we were just going to see the opthalmologist but when we got there I found out they had Crew scheduled to see the Pediatrician, Audiologist, Opthalmologist, Speech, Social Worker, and Psychiatrist (uggh). I wiggled out of seeing the Audiologist (already have one), & Speech. The opthalmologist said his eyes are still perfectly straight. Yeah! That is one less thing to worry about.

We busted out of there about 11:30 and went straight to PCMC which is another hour drive. We got there at 12:30 to see our new Neurologist. Dr. F was great! He spent time going over Crew's medical history, examing Crew, and discussing. Because Crew's last EEG was exactly one year ago, Dr. F decided it wouldn't really help much to get another one. Another MRI really wouldn't tell us anything we don't already know, so basically he prescribed a different seizure med for Crew, Topamax. We are weaning him off of the Dilantin for the next two weeks as we begin the Topamax. I'm concerned about the side effects it could be having on Crew... irritability, loss of appetite, dizziness, etc. Also, it seems that Crew just isn't his normal bubbly self. That makes me really sad. However, I'm feeling a bit under the weather tonight so I am wondering if maybe Crew is getting sick... Oh, I hope it's not the medication!


  1. What a busy day. I hope that crew can be seizure free and that the medication doesn't influence him in any way. I don't know much about meds, but couldn't it be that Crew's system is taking a while to get used to the medication?

  2. That is a very long day!

    It was good to speak to you. I do hope everything works out with the meds.

    I have really found, that once they settle in, the sparkle does come back.

    I love Dr F. I am glad you got in!

  3. Wow...sounds like that boy is definately getting the help he needs!
    I hope those new meds work wonders, and withOUT the side effects!! :)

  4. I love the stop sigh idea. I hope you can get the medication thing figured out. We that bubbly personality back. I don't know how you keep up with all of those appointments. Your a superwoman.


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