If I've learned anything from the journey of raising Crew it would be to celebrate each and every achievement. The "BIG" milestones are few and far between... sitting up, crawling, walking etc. As a family we cheer for the little things. Over time I've noticed that S & H's awareness of the situation has changed. Their prayers are different. Instead of "Bless Crewser that he can walk", its "Please help Crew to get really fast in his walker".
In their presence its my job to be positive always complimenting the little things and making a big deal out of stuff. "Crew is feeding himself! Look how he can scoop! Check it out... he understands cause & effect (while playing with his ball popper)!"
The praise goes on and on. I am proud! We love him! He brings us joy!
And also,
My heart aches. He doesn't talk. The list could go on and on but I try not to focus on what he can't do. Yet, the pain is there and I desperately want to hear what is going on in his little head.
And so we wait, we pray and we hope for yet another miracle because the truth of the matter is, this battle can be won!
I'm sorry. I can't imagine how that must feel. I feel really selfish for being frustrated when my kids wouldn't do something when I thought they should be able to. Thank you for putting it into perspective and YAY for the little things!!
ReplyDeleteI think your right, it is a battle that can be won. That little Crewser is smart. I know he can do it. You are so right to cheer for his accomplishments no matter how small. My heart goes out to you for the pain you must feel for the the things he can't do YET.
ReplyDeleteI admire your positive attitude! If I were in your situation I think I'd be a lot LESS positive!
ReplyDeleteI'm constantly amazed by the things I learn about from you...you have to remember that "this battle can be won!" *hugs*
I am so looking forward to Jack having a sibling. I truly hope Jack's little sister will be just like Crew's brothers! They are such amazing boys.
ReplyDeleteI understand your heart ache and feel it every single day. Along with our ache there is also a joy no one else can know unless they've been hear. I like to think of it as witnessing small miracles over and over. With every new milestone (or as we sometimes call them "inchstones") there is such true awe.
((hugs)) -- and know you're not alone!
ps - hear is supposed to be here! Typing too fast this morning! lol
ReplyDeleteCrew in himself is a miracle! Without telling you, you can see in his face how happy and loved he feels.
ReplyDeleteYou have such a positive attitude. You are a wonderful example.
ReplyDelete((hugs))
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